The Story

About Shant

Author, speaker, and entrepreneur turning a lifelong battle with a rare genetic disease into a message of hope.

The Story

Who Shant Is

At nine months old, I was diagnosed with Familial Mediterranean Fever—an ultra-rare form of a genetic disease that would come to define the landscape of my life. While most children were learning to walk, I was learning what it meant to endure pain that doctors struggled to explain.

FMF is an invisible illness. Between episodes, the world sees normalcy. But beneath the surface lies a reality of chronic pain equivalent to labor contractions, hospital visits that stole weeks of childhood, and the quiet question that haunted my darkest moments: Why me?

My journey has not been one of defying odds—it has been one of transforming them. Through discipline, through faith, through the quiet, daily decision to show up when everything suggested otherwise, I discovered that adversity is not the absence of opportunity—it is the refining fire that reveals who we were always meant to become.

Today, I share this truth with readers and audiences around the world: our struggles carry meaning beyond ourselves.

Resilience

The art of rising, not despite our circumstances, but through them.

Faith

A foundation that sustains when all other ground feels uncertain.

Purpose

The conviction that our struggles carry meaning beyond ourselves.

Quick Facts

Hometown
Watertown, Massachusetts
Heritage
Armenian American
Education
Georgetown University (Management); accepted to a Harvard medical certificate program
Debut Book
My Life, My Victory: Thriving with a Rare Genetic Disease (December 2023)
Recognition
#1 Amazon Bestseller in chronic pain categories
Readers
In 64+ countries
By The Numbers

Impact & Reach

0+
Countries Reached
#0
Bestseller
0
Months Old at Diagnosis
0
Published Books
Global Impact

Reaching Readers Worldwide

"My Life, My Victory" has touched lives across 63 countries, spreading a message of hope and resilience.

63 Countries & Growing
United StatesCanadaMexicoBrazilChileArgentinaColombiaGrenadaArubaUnited KingdomScotlandIrelandGermanyFranceItalySpainNetherlandsBelgiumSwitzerlandAustriaSwedenNorwayDenmarkFinland+39 more